Specialist agent · for patient-led organizations

The Patient Organization Navigator

A discovery-first, user-led AI specialist for patient advocates and leaders of patient-led organizations — most often rare-disease nonprofits. It helps a leader understand where their disease area stands, what has been done, where the gaps are, and where their funding and capacity sit — then lays out concrete directions grounded in that reality. It never prescribes. The leader leads; the Navigator does the homework.

How to install & use ↓ Repository →

Built to meet an organization where it is

It serves organizations across the full maturity spectrum — from those years away from a tractable therapeutic strategy to those already leading a program. A large gap map is a community not yet served, not a failure. Every output is encouraging, honest about its assumptions, and framed as a resource to review.

How it works

Discovery before deliverables

One conductor skill runs the engagement and threads a single organization profile through it, composing the catalog rather than reimplementing it. The leader chooses the direction at every fork.

Discovery interview Vision, mission, disease area & maturity, budget, personnel, current assets, risk appetite — and, above all, what the leader wants. Nothing is proposed before the organization is understood.
Choose your focus A branch menu — research gaps, research readiness & infrastructure, therapeutic pipeline (incl. CRISPR), regulatory & patient voice, access, or organizational capacity & funding. The leader picks one or several.
Do the homework The Navigator composes catalog skills to build the chosen deliverables, threading one org_capacity_profile.json as the source of truth — pausable, resumable, auditable.
Log every assumption Each blank filled with an assumption is logged, surfaced in-session, and stamped on every deliverable with a standing invitation to correct it.
Deliver resources to review Options tiered by cost and effort, sequenced low-cost-first, built on what the organization already has — framed as a first draft to cut and reorder, never a prescription.

What's in the repository

One specialist, three companion skills

conductor

patient-org-capacity-engine

The conductor. Runs the Stage 0 discovery interview, presents the six-branch focus menu, maintains the assumption ledger, and composes the other skills — threading one org_capacity_profile.json as the source of truth.

timeline

disease-landscape-timeline

A single source-grounded figure answering “where has this field been, and where is it now?” across five tracks — Science, Regulatory, Natural history / infrastructure, Pipeline, and Patient voice — every milestone tied to a retrieved source.

gaps & options

capacity-gap-roadmap

A patient-journey gap inventory across seven stages, a peer-organization model bank scaled to the org's size, and a phased roadmap of options tiered by cost — each classified by posture (amplify / revive / connect / build).

The discipline

Five commitments, baked in

These are non-negotiable — enforced by the engine, not left to tone.

Discovery before deliverables Never propose directions before understanding the organization.
The leader chooses the direction A branch menu, not a decision made for them.
Assumptions are logged, surfaced, and resolvable Every blank filled is flagged, in-session and in every deliverable, with a standing invitation to correct it.
Encourage, don't gatekeep Meet the organization where it is; frame small first moves as real leverage and ambitions as horizons with prerequisites.
Resources to review, never a roadmap Options tiered by cost, sequenced low-cost-first, built on what the organization already has.

Distilled from a real end-to-end engagement with a rare-disease nonprofit — a therapeutic-program run, an externally-led PFDD (EL-PFDD) toolkit, and a full capacity/budget scoping with a gaps-and-options analysis. The skills generalize that methodology for any patient-led organization.

Get started

How to install and use it

You do not need to be technical. The repository ships an idempotent installer that publishes all three skills and creates the PATIENT_ORG_NAVIGATOR agent profile with full catalog and connector access.

Easiest — paste one prompt Open a Claude Science conversation and ask it to install the Navigator from the repo:

Please install the Patient Organization Navigator from
https://github.com/ruthannepai-tech/patient-organization-navigator
Clone or download it, then run install.py from the repo root in the
repl tool with exec(open("install.py").read()). Then create its
environment and offer to switch me to it.

Your agent handles the rest; the Navigator then appears in your agent picker.

One command — if you already have the repo From the repo root, in the Claude Science repl tool:
```
exec(open("install.py").read())
```
It is idempotent — safe to re-run, and it updates in place.
Switch to the specialist
```
host.agents.switch('PATIENT_ORG_NAVIGATOR')
```
Or pick Patient Organization Navigator in the session-config popover.
Start the engagement Just say hello — the Navigator opens with the discovery interview before it proposes anything.

Scope & caveats

The Navigator does not run a therapeutic program end to end — for that, it points the leader to the Therapeutic Program Architect. All outputs are resources to review, not a prescription; every deliverable opens with the assumptions it rests on and an invitation to correct them. Research and informational content — not medical, legal, or financial advice.

Open the repository → All repositories